*After a ten-year battle with Alzheimer's, my mother passed away on Saturday, August 18th.
*A few days before she died, I got the call she was declining. My wife and I flew back early from our summer vacation on the west coast.
*While on the plane, I wrote a letter to my mom in what was to become my eulogy that I gave on Saturday, August 25th at her memorial service.
*We teach our students to express themselves, take risks, and explore feelings; in their writing. I guess I want to expect the same of myself.
*This blog is normally about books, my reading life, and the students I work with. I've been thinking about my mom a lot since her passing and I thought it might help to put my words out into the universe.
*Here are the words I wrote while flying back from Seattle to the Twin Cities...
Wednesday, August 15, 2018 at 9:10 PM
Dear Mom,
I’m presently on a flight from Seattle back home. Kris and I have been on a summer vacation
this last week and our final stop was to visit with John, Peggy, and
Kelly.
You put a little “glitch” in those plans. You seem to be trying to say something this
last month. While dad, Megan, Kris, and
I were on the final leg of our France trip in July; you had your first “known”
seizure, which of course put us all into a tailspin. Maybe it was your way of saying “Come
back. I miss you all.”
We ended our trip early, hurried back, and found you in
pretty good spirits and actually a bit more “babbly” than usual. That first seizure seemed to have zapped a
bit more life into your system. I enjoyed
getting back to our routine of washing your hair, spraying your favorite Beautiful
perfume on, and spending time watching television or chatting with each
other.
Right before Kris and I left for Washington and Oregon, I
told you there would be no more seizures and I would be back in a week. Well, you didn’t listen and made it clear
that it was time for me to be back by your bedside by having a second seizure,
but this time around it looked like you were not going to bounce back.
If I couldn’t be right with you at that moment, I couldn’t
think of anywhere else I would have rather been when Megan called with the news,
then with Kris on the west coast. We
were about to head back to Seattle to spend a couple days with Uncle John, Aunt
Peggy, and cousin Kelly. In some ways,
it was like it was meant to be that I was in the place where you and dad
started our incredible journey. I was
spending time with your family, including cousin Jack, and I know they all mean
the world to you
As that first day or two went by and we realized you were
serious this time, the only thing I knew in my mind and heart, I wanted to be
with my mom. Once again, we changed our
plans, hoped on an earlier flight, and at this moment I’m heading home to
you.
What a journey this has been. I cannot express in words how much I have
missed you over the last five or so years.
But it is nothing compared to the thought I have now that you are truly
leaving us. The world of Alzheimer’s is
not one I would wish on anyone or any family, but looking back on the last tens
years when it all began, I think we all did one hell of a job dealing with what
we were given.
When I think back to when we were losing you to some kind of
memory issue, I had no idea what the future had in store for us. The one true blessing and comfort I have is
that I don’t think you were ever truly aware of the changes and what was happening
to you. That makes my heart warm and
smile with love.
I want you to know that I think you were the best mom
ever. You were not only my mother, but
one of the best friends I’ve ever had.
You were my rock. You were my
confidant. You were one of my biggest
supporters.
Looking back to our days on Riviera Drive, I can remember
those nights when I would come home from school and even college; we would talk
through the walls of our bedrooms. I
always wanted to share everything that was going on or happening in my
life. You were interested, curious, and
always gave me your full attention.
What a beautiful childhood you and dad provided Megan and
me. Life on Riviera Drive was ideal,
full of life, and provided our family with some lifelong memories and
friends. I always thought when Kris and
I built our first home and moved in, our neighborhood would be like the one I
had as a child. I quickly learned the
experience we had on that street isn’t easily recreated.
Life in Woodbury brought the next phase of our family. I will always remember the joy on your face
when we told you that you were going to be a grandmother for the first
time. Based on what I knew and heard from
you about my own Nana Hazel, we knew you were meant to be a grandma. When I called you right after Kate was born,
I couldn’t even get the words out on the phone because I was overcome with
emotion sharing with you that we had a daughter. Eighteen short months later when we shared
with you that you were going to be grandparents for a second time, your
response was “Already!”
I can still picture you walking into the hospital room for
both Kate and Ben with your Gymboree packages.
You stated that the clerks could tell you were a new grandparent and fresh
prey. Your grandson Ben still has his
Gymboree blanket in the closet and brings a smile to my face every time I see
it.
Our family became complete when Casey William entered the
world. I know there is something special
about a mother seeing her daughter have her own child. You were over the moon with excitement and
love to have your three grandbabies surround you as much as possible. I loved it when you would call and ask if you
could just stop over and get your baby fix.
You lived for holidays, get-togethers, and vacations as a
family. It meant the world to you and
was the only thing that mattered. One of
my biggest regrets in life is that Kate, Ben, and Casey didn’t have the “true”
grandma Jo Jo in their lives, once this disease took over. On the other hand, there is nothing quite
like seeing these young adults stand and sit by your bedside, take your hand,
and tell you how much they love you.
They have handled this disease with strength, grace, and love.
We all know that you could be a bit of a worrier. I know at times you probably felt like you
had to apologize for it, but thinking back I know the worry and concern over
things came from a place of love, care, and concern. If there are any benefits from having
Alzheimer’s, and there aren’t; was that as you progressed through the disease
your “worries” became less and less. We
enjoyed how you didn’t worry about traffic, weather, or any of the horrific
events going on in the world. You were
able to stay in your own world of smiles, giggles, and happy thoughts.
One of the biggest thank-yous I want to give you is for the
unbelievable support you gave me and my family when I was diagnosed with
cancer. When I first found out I told
Kris. Then I wanted to tell you. I called the house and dad answered. After a few minutes of chit-chat, I asked if
you were home and he said you were at your retirement dinner for the Wilder
Foundation. I told dad what was going
on. He later said, when you got home and
looked at him; you knew something was wrong.
You always did have that sixth sense.
Driving was not your thing.
But you got yourself in the car, on the freeway, and drove to Fairview
Southdale each and everyday. You sat by
my bedside, got me anything I needed, and held the bucket while I was getting
sick. No man ever had a better support
than having a wife like Kris and a mom like you. Between the two of you, I had no choice but
to get better and back to the living.
I vaguely remember, but I know you and I have shared your
Shirley McClain story many times. After
my major surgery for the cancer, they put me in a room with another
patient. That wasn’t what my doctor had
ordered and it was NOT acceptable to you.
At first you were kind and polite with the nurses. But after a couple hours when nothing was
getting done, you hit that nurse’s station and made it clear your son would get
his single room and get it now. Within a
few minutes I was resting comfortably in my new spacious single. Moms seem to get what they want for their
children.
During this illness mom, one of the things I missed most was
our daily conversations. I remember
leaving Prairie View, getting into my car, and calling you. We would talk for the whole way home and
sometimes even into the house. Kris
always knew who I was talking to when I walked in with the phone to my
ear. You listened, you asked questions,
and always showed 100% interest. It will
always be one of my fondest memories you and I shared. I can’t tell you how many times in the last
few years when I wanted those afternoon 494 conversations back.
It is funny how some of the things that probably use to
irritate Megan and I, and I know for sure did Kris and Al, were all the phone
calls from mom just checking in. What I
wouldn’t give to be able to have you do that again. Several of your friends have mentioned that
was how they knew things were changing for you.
You didn’t pick up the phone and call anymore. One of your many talents was the gift for
gab.
While you had the gift for talk, dad was given the gift of
being the strong silent leader of our family.
During this journey, I’ve often thought you and God gave us this challenge
so that you were given a chance to take the backseat and dad got in the
driver’s. Megan and I have had the
honor and privilege of standing by his side and navigating our way through
these muddy and rough waters. He stepped
up to the plate and never veered from the path that had you front and center,
and his complete focus. I have gotten to
know him more and more over the last few years and I couldn’t be more proud of
the man you married 54 years ago this past July.
Because of your Alzheimer’s, I know that Megan and I have
become closer than we would have without the disease. When you first started changing, I was
probably in denial and looking the other way.
I didn’t want to think about you changing and leaving us. There was a day when we were on the phone
talking, and in her subtle and kind way, Megan told me it was time for me to
step up and start helping her out. I
know since that conversation she and I have been partners, friends, and
decision makers. And every decision we
made was with your BEST interest at heart.
When Kris and I would talk about the progression of your
illness and how dad was dealing with it, she said there is no man who loves his
wife as much as he loves you. He was the
absolute best care giver and did everything in his power to keep you safe,
comfortable, and at home. What I think
was truly remarkable was that he didn’t stop living or let you stop. While it may have been easier to sit at home,
he and the home care givers would take you to Kowalski’s, lunch, shopping,
walks, and a variety of other places.
When it got hard for you to get in and out of the car; dad didn’t give
up and say you should stay at home. He
found ways and tricks to help you maneuver in and out.
I know one of the things dad feels the guiltiest about, is
when we had to move you from home to New Perspectives Memory Care. He held off as long as he could, but it
finally got to a point when he just couldn’t do it anymore and it wasn’t safe
for you at home. We walked you into memory
care in April of 2016. The next day you
were not walking anymore. Maybe you knew
that you were in a place where you could stop trying so hard as you had to back
home.
Mom, I know that having to spend the last two years at New
Perspectives was not something you wanted for your life, but I must say you
made the best of it and became a favorite of the caregivers and residents. While Megan, dad, and I may not have always
gotten that beautiful smile of yours on every visit, when any of the caregivers
walked in and greeted Jo Jo, you always received them with a warm smile
back. You were sweet, kind, and so
appreciative of all the care they provided you.
Every single one of the care givers would comment to us how sweet you
were and they could tell what a wonderful and caring mother you were. I told them they were 100% correct. I remember recently talking with one of the
staff and she said to me “I wish I could have a conversation with your
mom.” I looked back at her with tears in
my eyes and said “I know what you mean!”
Whenever it was time for me to leave your room, I would
always whisper to you that I loved you and I would take care of dad and
Megan. That you had nothing to worry
about and when you were ready to begin your next journey with God, we would be
ok. It amazed me how long you held on,
fought, and stayed with us. At times, it
would break my heart to know the way you were being forced to live. I hated it. Kris would tell me that you were a
strong-willed woman and just weren’t ready to leave us yet. When it was time, you would let us know and
we would follow your lead. Not only do I
have a really smart mom with good advice, I married a woman with those same
incredible qualities.
I want to thank you for leading our family for so many years
and supporting us in whatever it was we decided to do with our lives. There was nothing more important to you than
the eight of us. You welcomed Kris and
Al into the Andrus family with open arms and knew your children had made the
perfect choice for spouses. You wrapped
your three grandchildren in your arms and never let go.
I have missed you for so long that I don’t know if I could
miss you anymore, but somehow I know that the coming days, months, and years
are going to be even more difficult than the past ones have been. I’m not quite sure what my life will look
like without you in it. But I do know
that I want to move forward and make you as proud of me as possible.
As hard as it will be not having you to visit anymore, I
know in my heart you are in a better place.
You are in a place that gives you a clear and open mind. You are in a place that has given you all
your memories back in full and high-definition color. You are in a place where you can roam free
with your legs. You are in a place where
you can eat ice-cream and drink all the white wine you want (with ice cubes of
course). You are also in a place where
you can pick up the phone and call anyone of us at anytime of day just to
“check-in”.
It has been one heck of a journey mom and you did us
proud. I know it wasn’t the retirement
years you and dad were hoping for, but as we all know, we have to deal with the
cards we are dealt. And deal we
did!
We took this Alzheimer’s road as a family. But we could not have done it without the
people you came to know and love. Just
know that your and dad’s friends were there for us. Kris and my friends were a support system,
just as I know they were for Megan and her family. Not only did you make new friends while in
memory care, but we got to know them as well.
We shared stories, experiences, tears, and support. This is an ugly disease and too many families
out there are dealing with it on a daily basis.
The care you received was top-notch and we all knew you were in the best
place possible.
You always said you had some of the best friends ever. I know you know, but we were fortunate for
Judy, Joan, Betty-Jo, Tove, and others that stood by your side the entire
way. Your BFF, Tove, was one of a
kind. She made a point to visit and sit
by your side multiple times a month without fail. She was there with you when you started your
life in Viking Village back in 1967 and she was here as you ended your journey
during the summer of 2018. We can never
thank her enough for all you she did for you.
Tove, in our eyes, you have earned a special place in heaven.
We are going to miss you more than ever mom!
Kris loves you.
Kate loves you.
Ben loves you.
Megan, Al, and Casey love you.
And you know how much dad loves, adores, and cherishes
you. Just as much as you did him.
I love you mother. I
hope I have made you proud and have become the man you raised me to be.
Just know I will take care of Megan and dad and you have
nothing to worry about.
Go and be free with no worries and look down on the
Andrus/Schneider/Gettles clan with that beautiful smile and sparkle in your
eye.
I love you! Your son
PS: The pilot has just
announced we are making our decent into Minneapolis/St. Paul. I have come home to see my mother for one
last time with tears in my eyes and a heart that is bursting with pain but
overriding that pain is the love I have for you…
Patrick,
ReplyDeleteWow!!! Such beautiful words written about your Mom. You are so blessed to have a Mom like JoJo. And the memories you have with her are yours for keeps. Reflect on them and they'll help the healing process take place. Our family knows the struggles and challenges with Alzheimer's and we can only hope and pray that a cure is on the horizon. Brenda Dronen